Understanding Epidermolysis Bullosa: Darcie's Daily Care
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TikTokdarcies_story
Understanding Epidermolysis Bullosa: Darcie's Daily Care
Explore the daily challenges of caring for Darcie with Epidermolysis Bullosa(EB) and understand her unique needs. #EBawareness #EpidermolysisBullosa #woundcare Darcie’s Story🦋(@darcies_story). original sound - laila masumi. We didn’t know. Not during pregnancy. Not even on the day Darcie was born. The future we planned, definitely wasn ...
2.8M views5 months ago
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Everyday is just about managing Darcie’s condition and making her comfortable.🙏🏻🤲🏾
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Everyday is just about managing Darcie’s condition and making her comfortable.🙏🏻🤲🏾
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EB is so unpredictable… Less than 12 hours after Darcie’s 1st birthday, we ended up in hospital. Through the night she was in a lot of pain and wouldn’t open her eyes. Even with pain meds, she was still so uncomfortable. There’s a chance she has a corneal abrasion — essentially a blister in the eye. If that’s the case, she may not open her eyes for a few days until it heals. It’s hard to know for sure, because we can’t see her eyes right now. On top of that, she has stridor — a blockage or narro
1:01
EB is so unpredictable… Less than 12 hours after Darcie’s 1st birthday, we ended up in hospital. Through the night she was in a lot of pain and wouldn’t open her eyes. Even with pain meds, she was still so uncomfortable. There’s a chance she has a corneal abrasion — essentially a blister in the eye. If that’s the case, she may not open her eyes for a few days until it heals. It’s hard to know for sure, because we can’t see her eyes right now. On top of that, she has stridor — a blockage or narro
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Darcie's Journey with Epidermolysis Bullosa
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Ending the week so much better than it started. Infections take so much out of Darcie, and watching her struggle is never easy. But her strength and determination amaze us every single day. Another hard week done — hoping for brighter days ahead. EB won’t slow her down… and neither will we🦋❤️ #EpidermolysisBullosa #EBAwareness #fyp #babytok #butterflybaby
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We've learnt to change Darcies dressings throughout the day, rather than one sitting as Darcie #help
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please help 🙏 us by sharing to change darcie's story 🙏 from EB #viral #support #linkinbio #help
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