Despite its prevalence and impact, there is no CF-specific guidance for the assessment and management of pain. The Cystic Fibrosis Foundation assembled an expert panel of clinicians, researchers, ...

A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...

I was diagnosed with cystic fibrosis-related liver cirrhosis in 2004 at the age of 9. Growing up, my disease wasn’t something to be pitied or seen as a weakness. It was a strength. I had the mentality ...

The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to people with cystic fibrosis ages 2 and ...

Caring for a child with CF is challenging in more than one way. My daughter’s struggles often bring up my own mental health obstacles, making it difficult to be fully present for her when she needs me ...

This blog discusses suicide and suicidal ideation. If you or someone you know is suicidal, please contact your physician, go to your local ER, or call/text the National Suicide Prevention Lifeline at ...

When my daughter, Elara, was diagnosed with cystic fibrosis at just 1 month old, my world shifted in an instant. As a mother to a 5-year-old, I was no stranger to the ups and downs of parenting, but ...

Living with cystic fibrosis demands a complex regimen of care and treatment. Across the U.S., managing this care involves navigating a maze of health insurance coverage and significant out-of-pocket ...

The Rocky Mountain Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...

The Northern California Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...

The Central/Western Oklahoma Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to ...

The Michigan Chapter of the Cystic Fibrosis Foundation welcomes you! Our Chapter covers all of Michigan and Northwest Ohio, including Toledo, Perrysburg, Maumee, and Findlay areas. Volunteers are the ...