Trikafta has transformed my life in ways I never thought possible. But with that came a sharp awareness of those still waiting for a treatment that works for them. That’s why I’m deeply committed to ...

Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...

Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the ...

Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is ...

When I tell people I’m training for a full Ironman competition, their reactions range from raised eyebrows to outright disbelief. It involves swimming 2.4 miles, biking 112 miles, then running a full ...

I was 8 years old, standing in our family dining room with my dad, setting the table for my baby sister Jill's 2nd birthday celebration. Always older than my years, I remember so clearly saying to my ...

I thought I had cystic fibrosis figured out. Growing up, I had challenges like a brutal morning cough that lasted for hours and a constant sense of fatigue, but I still felt like one of the lucky ones ...

My son was diagnosed with CF in 1965 and bravely defied the odds, living 28 cherished years. Then, decades later, I was stunned to receive a CF diagnosis of my own.

A recent hospitalization reminded me that my strength to fight cystic fibrosis is deeply rooted in my Filipino heritage and the unwavering support of my family.

WASHINGTON, D.C. (March 6, 2025) — On Monday, the Department of Health and Human Services (HHS) published a document in the Federal Register announcing rescission to a long-standing policy that ...

I didn’t struggle too much during my freshman year of high school, but I struggled a lot when it came to my sophomore year. I was diagnosed with CFRD and Type 2 diabetes — and endured a lot of ...

I started Trikafta as soon as it became available to me in December 2019. I was one of those CFers who experienced ‘the purge’ shortly after taking my first couple of doses. It was completely ...