Jesy Nelson, type 1 and Spinal Muscular Atrophy

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Jesy Nelson Reveals Twins' Rare Diagnosis—What Parents Need To Know About Spinal Muscular Atrophy
British singer Jesy Nelson recently took to Instagram to share a devastating update about her 8-month-old twin daughters.

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What is spinal muscular atrophy type 1 as Jesy Nelson's twins receive heartbreaking diagnosis
Blavity on MSN · 2d
Jesy Nelson’s Twins Diagnosed With SMA Type 1, Singer Says They May Never Walk
Jesy Nelson says she has 'duty of care' to help others after twins' diagnosis
Former Little Mix singer Jesy Nelson has said she feels she has a "duty of care" to raise awareness about the rare genetic condition her twins have been diagnosed with.

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Jesy Nelson shares update from hospital as she reveals she is fighting for SMA1 screening at birth after her twins' diagnosis because early treatment helps to prevent severe muscular disease
Jesy Nelson will 'shout from the rooftops' about baby muscle disease campaign
Heartbreaking new video of Jesy Nelson's twins shows early symptoms experts missed
The Little Mix star announced on Sunday that her twins had been diagnosed with the rare genetic condition spinal muscular atrophy and may never walk.

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Jesy Nelson's Twins: All About the Little Mix Alum's Daughters Ocean and Story
Nottingham Post · 20h
Little Mix's Jesy Nelson speaks out on key signs after twin daughters' diagnosis
The American Journal of Managed Care

Shaping Gene Therapy Approaches in Neuromuscular Disease

Adeno-associated virus (AAV)–mediated gene therapy was one of the focal points of this year's Muscular Dystrophy Association conference. Here, Barry Byrne, MD, PhD, University of Florida, speaks to the novel development of AAV gene therapy and its ...
WPLG

First ever therapy for deadly type of muscular dystrophy

CORAL GABLES, Fla. — There’s new hope for children born with a fatal form of muscular dystrophy. Nicklaus Children’s Hospital is one of the first in the nation and one of only three hospitals in Florida offering Elevidys, an FDA approved infusion ...
Healthline

What Are the Most Common Pediatric Neurological Disorders?

Neurological disorders affect the function of the nervous system. Common pediatric neurological disorders include ADHD, autism spectrum disorder, epilepsy, and cerebral palsy. Neurological disorders are conditions that affect the nervous system. Recent ...
The American Journal of Managed Care

ICYMI: Highlights From MDA 2025

Highlights from the 2025 Muscular Dystrophy Association (MDA) Conference include clinical updates, expert insights, and breaking trial findings.
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