A Canadian doctor from Ontario says he would be in support of a rare, genetic disorder being added to newborn screening tests in the province, after a father in the United States made a heartbreaking ...

BUFFALO, N.Y. (WIVB) — The Federal Newborn Screening Advisory Committee voted to add Krabbe Leukodystrophy Disease to the recommended newborn screening panel (RUSP), which is a huge victory for Hunter ...

WASHINGTON, D.C. – The Department of Health and Human Services issued a final approval for the addition of Krabbe Disease to the Recommended Uniform Screening Panel (RUSP) for newborns. “The final ...

A mother in Durham who lost her son to a rare disease is on a mission to help other children have a chance at life. Kelly Brown's work in the Triangle is helping families all around the world. Other ...

Krabbe leukodystrophy is a disease that claimed the life of Buffalo Bills Hall of Fame quarterback Jim Kelly's son. Kelly and his wife Jill have been fighting to make sure no other families endure ...

Researchers at Duke University and the University of North Carolina at Chapel Hill found stem cell transplants from umbilical cord blood helped children with Krabbe Disease. The findings offer hope ...

BUFFALO, N.Y. – A University at Buffalo researcher working on Krabbe disease (KD) has been awarded a $250,000 grant from the Rosenau Family Research Foundation to investigate how an enzyme deficiency ...

BEAVERTON, Oregon (KPTV) — A 5-year-old Beaverton boy is fighting a rare disorder called Krabbe disease. His parents say it’s possible his life could’ve been saved had the Oregon legislature acted ...

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BEAVERTON, Oregon (KPTV) — A 5-year-old Beaverton boy is fighting a rare disorder called Krabbe disease. His parents say it’s possible his life could’ve been saved had the Oregon legislature acted ...